Below you will find some tips for dealing with some common problems associated with Alzheimer's
Avoid unpleasant odors,
Eat small meals frequently,
Chew slowly and thoroughly,
Sip cool, clear liquids between meals,
Rest after meals with head elevated,
Avoid hot, spicy, strong-smelling foods or fried, greasy foods,
Try foods which are cold or at room temperature, and low-fat food,
Eat dry or salty food,
Try fresh air and loose clothing.
Dry or Sore Mouth
Drink plenty of liquids,
Suck on ice chips,
Suck on popsicles made of milk or non-acid juices,
Dunk or soak foods in liquids,
Use extra gravies, sauces, salad dressing,
Rinse mouth frequently,
Suck hard candies or chew gum,
Eat sweet or tart foods if no sores in mouth,
Artificial saliva can be used.
General Tips for Helping the Older Person to Eat Well
Plan meals and snacks to include the person's favorite foods. Use a variety of foods from each of the four food groups, Prepare foods that provide a variety of texture, color, and temperature, Provide a pleasant setting, i.e., flowers, place mats, matching dishes, good lighting.
In addition to books, recipes and literature, the organizations listed below are valuable in providing tips, ideas, counseling, and reminders that you are not alone. They can help make the gradual transition to improved eating habits: (Addresses listed were local San Diego. For same or counterparts in your locality check your telephone directories or contact United Way: American Heart Association; American Diabetes Association; American Cancer Society; Arthritis Foundation; Dietetic Association; United Ostomy Associates.
Medical aspects of caregiving
Encouraging routine physical examination:
As a caregiver, you are in a position to help your care-receiver along the road to good health care by encouraging routine physical examinations. You are valuable in helping the care-receiver talk to their doctors and other medical personnel. You can follow through with their medical treatment at home.
However, it is important to remember that the primary responsibility for medical treatment rests between the doctor and the patient. If there is any doubt about what you should or should not do, the doctor should be consulted. You can help your care-receiver to understand his/her medical treatment and encourage the care-receiver to be involved in making decisions. In medical treatment, it is often tempting to decide what is best for the patient, but it is best to recognize the care-receiver's need to choose. We all need control of our lives, and this is especially true for a person who needs the help of others. If there are serious concerns about decisions being made, caregivers should discuss the matter openly with the doctor.
Keeping Records and Managing Medications:
Caregivers can help older people maintain medical records for use by the doctor. Arrangements can be made through the doctor's office to send for previous records that could be helpful in treatment. This may require getting Releases of Medical Information signed by the care-receiver. You also should keep a list of all medications (both prescribed and over- the-counter) being used. The same medications that are helpful in easing pain, stopping infection, controlling heart rate and keeping people healthy can also cause serious problems.
Because many older adults take several medications at one time, it is possible that these drugs can interact with one another and be a danger. If more than one doctor is prescribing medications, it isimportant to keep each doctor aware of the drugs that are being taken. You can keep them informed by taking all your drugs in a paper sack or a list of all your drugs to each doctor. Having one pharmacist that fills all of your prescriptions is a way to prevent taking drugs that interact and cause problems. Over-the-counter or non-prescription drugs also can cause problems. Talk with your pharmacist before using them.
If you find the medicine schedule confusing or difficult to follow, ask your pharmacist about preparing all medicines in blister packs.
Below is a sample of "current medication list" which includes the essentials: name of medication, sample of the medication taped beside its name, the reason for the medication, the dosage and the time the medication is taken:
Current Medications List
Tape Pill Here
If your care-receiver is taking several medications at different times throughout the day, it may be helpful to develop a second list to assist you with daily medication set-ups; this list may be color coded, or may have the names of the medications grouped in the times to be taken each day. For medications taken several times a day, their names will appear several times on your list as in the example below:
Daily Medication Set-up
Time of Day Medication is given, AM + PM
List all Medications for Each Time
* Bed Time
Choosing a Doctor
If you don't have a doctor, choose one carefully. There are several referral sources you can utilize: 1) a friend who is satisfied with his/her physician for a referral; 2) your County Medical Society; 3) Physician Referral Service; 4) A neighborhood hospital (some offer a physician referral service.)
The doctor is a valuable resource. If you are having a difficult time managing your care-receiver at home, or an acute illness occurs, the doctor may assist with related health care concerns. Your care-receiver may have to be hospitalized. The doctor may assist by making a home health care referral. Once hospitalized, the doctor can assist in placement issues or home health care upon discharge. If he/she doesn't offer it, you may request it.
If you are dissatisfied with your doctor, consider:
1. What do you want from your doctor?
2. Are these wants realistic (e.g., cure of an incurable disease)?
3. Have you discussed them with your doctor and/or staff?
4. Do you have a primary physician (usually internist or family practitioner) who oversees your overall medical care? (Often, sub- specialists such as cardiologists or orthopedists focus on one organ system, and do not try to coordinate the patient care.)
5. Do you keep your appointments?
6. Do you take medications as prescribed, contact the doctor if you change, and discuss your concerns with him/her?
Remember, physicians are human beings, with individual personalities, enormous responsibilities, and only 24 hours in one day. No doctor will be right for all patients. Find a doctor whose skills and style of practice suits your current needs. All patients should have one physician to coordinate their care. Frequently changing doctors is likely to result in poor quality care of chronic or complex problems.
Older individuals with multiple medical problems or difficulties with memory or intellectual functions may benefit from a comprehensive geriatric assessment program. (This guide identified one program in the San Diego area as the UCSD Seniors Only Care Program (SOCARE). Your physician or local Area Agency on Aging may have information on comparable programs in your community.)
Arranging the Doctor Appointment.
Some questions to ask when you make a first appointment:
What are the office hours?
How are the bills handled?
Who will answer my questions if the doctor is unavailable?
How does the office handle emergencies?
How is co-payment handled?
What hospitals does he/she go to?
On the first visit to the doctor, the patient's list of current medications and previous medical records should be given to the doctor. If the visit is for a specific problem, have the following information for the doctor:
1. The symptoms,
2. How long they have been present,
3. How often they happen, how bad they are.
Reviewing this information before the visit will help. And remember, it is important that the patient have a chance to visit with the doctor privately to discuss confidential information. Before leaving the doctor's office, meet with the doctor or the nurse to find out how you can help with treatment and what your role as caregiver should be.
It is useful to look at the following three areas:
1. What can be done now to help in the treatment of current medical problems,
2. How to recognize problems that may arise,
3. What to do in emergencies.
Planning For Emergencies Having an emergency plan is important, especially when a substitute caregiver occasionally takes your place in the home. (Post phone numbers for the following agencies next to your telephone or a conspicuous place where they can easily be seen by anyone. This sentence modified for readers outside San Diego County.)
1. The 911 number for emergencies (Medical, Fire or Police),
2. The physician's number (emergency and office number),
3. The name and number of the hospital the physician and the patient prefer,
4. The number of the home health agency, if one is currently making visits to the home,
5. The Poison Center phone number,
6. The 24-hour number of the medical or oxygen supplier, if one is being used,
7. The telephone number where you (caregiver) can be reached.
Remember, observe changes and signs of illness in the care-receiver. They can help detect a medical problem. But if any doubts about health arise, CALL THE DOCTOR FOR ADVICE; DO NOT PROCRASTINATE!
published by the NIH
Alzheimer's Outreach http://alzheimers.zarcrom.com
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