Bibliography of Alzheimer's and Caregiving


Activity Programming for Persons with Dementia: A Sourcebook. Chicago: Alzheimer's Association, 1995.

Adams, Martha O. Alzheimer's Disease: a Call to Courage for Caregivers. St. Meinard, Ind.: Abbey Press, 1986. ISBN: 0870292021

Alterra, Aaron. The caregiver: a life with Alzheimer's South Royalton, VT: Steerforth Press, 1999. ISBN: 1883642620 Alzheimer's Disease: A Handbook for Caregivers. St. Louis: Mosby, 1994.

Antonangeli, Judith M. Of Two Minds: A Guide to the Care of People with the Dual Diagnosis of Alzheimer's Disease and Mental Retardation, 1995.

Aronson, Miriam K. Alzheimer's Disease: What it Does, How to Cope with it, Future Directions. New York: Charles Scribner, 1988.

At home with Alzheimer's Disease : useful adaptations to the home environment. Rev. ed. Ottawa: Canada Mortgage and Housing Corporation, c1990. ISBN: 0662579879

Bair, Frank E. Alzheimer's, Strokse, and 29 Other Neurological Disorders Sourcebook: Basic Information for the Layperson. Omnigraphics, 1993.

Barrick, Ann Louise. et al. Bathing without a battle: personal care of individuals with dementia. New York: Springer Pub., 2002. ISBN: 2001032246 (hardbk) 0826115071 (pbk.)

Batiuk, Tom and Chuck Ayers. Safe Return Home: An Inspirational Book for Caregivers of Alzheimer's. Kansas City, MO: Andrews McMeel Pub., 1998.

Baury, Florence. A Time for Alzheimer's. Emerald Ink Publishing, 1998.

Bell, Virginia and David Troxel. The Best Friend's Approach to Alzheimer's Care. Baltimore, MD: Health Professions Press, 1996. ISBN: 1878812351

Botonis, Mara. When caring takes courage: Alzheimer's/dementia: At-a-glance guide for family caregivers: a compassionate, interactive guide for alzheimer's and dementia caregivers. Outskirts Press, 2016. ISBN: 9781478730538

Brackey, Jolene. Creating moments of joy for the person with Alzheimer's or Dementia: a journal for caregivers. West Lafayette, Indiana: Purdue University Press, 2000. ISBN: 1557532125

Brawley, Elizabeth C. Designing for Alzheimer's Disease: Strategies for Creating Better Care Environments. John Wiley, 1997.

Bridges, Barbara J. Therapeutic Caregiving: a Practical Guide for Caregivers of Persons with Alzheimer's and Other Dementia Causing Diseases. Mill Creek, WA: BJB Pub., 1996. ISBN: 0964517809 See Book Reviews Page

Calkins, Margaret P. Design for Dementia: Planning environments for the elderly and the confused. Owings Mill, Md.: National Health Pub., 1988.

Cail, Mary M. Alzheimer's: a crash course for friends and relatives. Chapel Hill, N.C.: True Wind Press, $c 2014. ISBN: 9780982575123

A Caregiver's Guide to Nutrition and Feeding. New York: The Western New York Chapter of the Alzheimer's Association.

Caring for Alzheimer's patients: a guide for family and healthcare providers. Edited by Gary D. Miner ... [et al.] New York: Plenum Press, 1989. ISBN: 0306431998

Caring for the Alzheimer patient: a practical guide. Raye Lynne Dippel and J. Thomas Hutton, eds. Amherst, NY: Prometheus Books, 1996. ISBN: 0879754273 (hbk); 0879754281 (pbk.)

Caring for the Caregiver: A Guide to Living with Alzheimer's Disease. Warner-Lambert, 1994.

Carroll, David L. When Your Loved One Has Alzheimer's. New York: Harper & Row, 1989. ISBN: 0060158875

Cassistre, Debra. Activity Ideas for the Budget Minded. Forest Knolls, CA: Elder Books

Cohen, Donna. The Loss of Self: A Family Resource for the Care of Alzheimer's Disease and Related Disorders. New York : Norton, 1986. ISBN: 0393022633

Coughlan, Patricia Brown. Facing Alzheimer's: Family Caregivers Speak. New York: Ballantine Books, 1993. ISBN: 0345375491

Cummings, Tam. Untangling Alzheimer's: the guide for families and professionals. CreateSpace Independent Publishing Platform; $b Dementia Association LLC, 2015. ISBN: 9780985445027

Cutler, Neal R. and John J. Sramek. Understanding Alzheimer's Disease. Jackson: University Press of Mississippi, 1996. ISBN: 0878059105; 0878059113

Davies, Helen P. and Michael P. Jensen. Alzheimer's: the Answers You Need. Forest Knolls, CA: Elder Books, 1998. ISBN: 0943873460

Davidson, Frena Gray. Alzheimer's FAQ: frequently asked questions, making sense of the journey. Los Angeles: Lowell House, 1997. ISBN: 1565657888

Davidson, Frena Gray. The Alzheimer's Sourcebook for Caregivers. Los Angeles: Lowell House, 1993.ISBN: 1565654838

Davidson, Frena Gray. Dementia: light for the journey. Bisbee, Arizona: Balian Books, 2014. ISBN: 9780991654093

Dippel, Raye Lynne and J. Thomas Hutton. Caring for the Alzheimer Patient: A Practical Guide. Prometheus Books, 1996.

Dowling, James R. Keeping Busy: a handbook of activities for persons with dementia. Baltimore: Johns Hopkins University Press, 1995. ISBN: 0801850592 (pbk.); 0801850584 (hbk.)

Driscoll, Eileen Higgins. Alzheimer's: A Handbook for the Caregiver. Boston: Branden Books, 1994. ISBN: 0828319626

Dunn, Hank. Hard Choices for Loving People: CPR, Artificial Feeding, Comfort Measures Only and the Elderly Patient. 3rd ed., Herndon, VA: A & A Publishers (P.O. Box 1098, Herndon, VA 20172-1098), 1994.

Eaker, Lorena Shell. One Step at a Time: a definitive study of Alzheimer's Disease and a practical guide for caregivers. Church Hill, TN: SCK Publications, 1996.

Entwistle, Charles C. "I'm Just Not Myself Anymore": A Family Guide to Alzheimer's Disease. Salt Lake City, Utah: Northwest Publishing Inc., 1994. ISBN: 1880416727

Ewing, Wayne. Tears in God's Bottle: Reflections on Alzheimer's Caregiving. Tucson, AZ: Whitestone Circle Press, 1999. ISBN: 0966754700

Family Care Guide. Massachusetts: The Alzheimer's Association of Eastern Massachusetts, 1988.

Feil, Naomi. The Validation Breakthrough: simple techniques for communicating with people with "Alzheimer's-type dementia. Baltimore: Health Professions Press, 1993.

Fish, Sharon. Alzheimer's: Caring for Your Loved Ones, Caring for Yourself. Wheaton, Ill: Harold Shaw Publishers, 1996. ISBN: 087788014X

Garratt, Sally and Elery Hamilton-Smith. Rethinking Dementia. Ausmed Publications, 1997.

Forsythe, Elizabeth. The Mystery of Alzheimer's: A Guide for Carers. Trafalgar Square, 1997.

Gfeller, Kate. Music Therapy Programming for Individuals with Alzheimer' Disease and Related Disorders West Music Company, 1995.

Gillick, Muriel R. Tangled Minds: Understanding Alzheimer's Disease and Other Dementias. New York: Dutton, c1998. ISBN: 0525941452 (hbk); 0452941452 (alk. paper)

Granet, Roger, M.D. & Eileen Fallon. Is It Alzheimer's?: What To Do When Loved Ones Can't Remember What They Should. New York: Avon, 1998. ISBN: 0380786362.

Grollman, Earl A. and Kenneth S. Kosik. When Someone You Love Has Alzheimer's : the caregiver's journey. Boston, Mass: Beacon Press, c1996. ISBN: 0807027200

Grubbs, William M. In Sickness & in Health: Caring for a Loved One with Alzheimer's Forest Knolls, CA: Elder Books, 1998. ISBN: 0943873126

Gruetzner, Howard. Alzheimer's: A Caregiver's Guide and Sourcebook. New York: Wiley, 1992.

Guidelines for Dignity: Goals of Specialized Alzheimer's/Dementia Care in Residential Settings. Chicago: Alzheimer's Association, 1992.

Haisman, Pam. Alzheimer's Disease: Caregiver's Speak Out. Chippendale House Publishers, 1998. ISBN #0-9662272-0-4. Distributed by BookMasters, Inc. (1-800-247-6553) See Book Reviews page.

Hall, Elizabeth T. Caring for a Loved One with Alzheimer's Disease: A Christian Perspective. Haworth Press, 1999.

Hall, Geri. As Memory Fades--The Caregivers Challenge Begins: Understanding and Coping with Problem Behaviors Related to Memory Loss: A Learning Guide. Scottsdale, AZ (13400 E. Shea Boulevard, Scottsdale, AZ 85259): Mayo Clinic, [1999?]. Email

Harmon, Dan, and Carol C. Nadelson. Life Out of Focus: Alzheimer's Disease and Related Disorders.Chelsa House, 1998.

Harris, Phyllis Braudy and Joyce Bichler. Men Giving Care: Reflections of Husbands and Sons.New York: Garland Pub., 1997.

Harris, Sherry Lynn. Adapting to Alzheimer's: support for when your parent becomes your child. Moorpark, CA: iM Press, 2014. ISBN: 9780990417200

Haugk, Kenneth C. Christian Caregiving: A Way of Life. Minneapolis: Augsburg Press, 1984. ISBN: 0806621230.

Hay, Jennifer. Alzheimer's & Dementia: questions you have--answers you need. Allentown, Pa.: People's Medical Society, 1996. ISBN: 1882606574

Helien, Carly R. Alzheimer's Disease: activity focused care. Boston: Andover Medical Publishers, 1992.

Hawksford, Diane A. Alzheimer's Disease: The Face of Alzheimer's. Palanquin Press, 2000. ISBN: 1891508059

Hendershott, Anne. The Reluctant Caregivers: Learning to Care for a Loved One with Alzheimer's Disease. Westport, CT: Bergin & Garvey, 2000. ISBN #0-89789-711-0.

Heston, Leonard. The Vanishing Mind: a Practical Guide to Alzheimer's Disease and Other Dementias. New York: W.H. Freeman, 1991.

Hodgkinson, Liz. Alzheimer's Disease: Your Questions Answered. London : Ward Lock, 1995. ISBN: 0706374010 (pbk.)

Hodgson, Harriet W. The Alzheimer's caregiver: Dealing with the Realities of Dementia. Minneapolis, MN: Chronimed, c1998. ISBN: 156561125X

Hodgson, Harriet W. Alzheimer's: Finding the Words. Minneapolis, MN: Chronimed Pub., 1995. ISBN: 1565610717 See Book Reviews page.

Hoffman, Stephanie and Mary Kaplan. Special Care Programs for People with Dementia, 1996.

Home Safety for the Alzheimer's Patient. San Diego: University of California, 1989.

Janus, Cynthia L. The Alzheimer's catastrophe: the long uphill battle against Alzheimer's disease and why we can't afford to lose. [United States]: LuLu Publishing Services, 2016. ISBN: 9781483443577

Jones, Moyra. Gentlecare: Changing the Experience of Alzheimer's Disease in a Positive Way. Point Roberts, WA: Hartley & Marks, 1999. ISBN: 0881791717

Just the Facts and More. Chicago: Alzheimer's Association, 1992.

Keck, David. Forgetting whose we are: Alzheimer's Disease and the Love of God. Nashville: Abingdon Press, 1996.

Key Elements of Dementia Care. Chicago: Alzheimer's Association, 1997.

Kindig, Mary Norton. Coping with Alzheimer's Disease and Other Dementias. San Diego, CA: Singular Pub. Group, 1993.

Knittweis, Jim. Alzheimer solutions : a personal guide for caregivers . Sausalito, CA : Lucid Press, 2002. ISBN: 0964618451

Kuhn, Daniel. Alzheimer's Early Stages: First Steps in Caring and Treatment. Hunter House, 1999.

La Tourelle, Maggie. The gift of Alzheimer's: new insights into the potential of Alzheimer's and its care. London: Watkins, 2015. ISBN: 9781780289960.

Landau, Elaine. Alzheimer's disease: a forgotten life. New York: Franklin Watts, 2005. ISBN: 9780531167557

Lovette, Katie. Caring for an Alzheimer's Patient at Home. Practice Management Information Corporation, 1999.

Lovette, Katie. Loving Care for Alzheimer's Patients. Los Angeles, Calif.: Health Information Press, c1999. ISBN: 1885987161

Lyman, Karen A. Day In, Day Out with Alzheimer's: Stress in Caregiving Relationships. Philadelphia: Temple University Press, 1993.

Mace, Nancy L. & Peter V. Rabins. The 36-Hour Day. 7th ed., Baltimore: Johns Hopkins Univ, 2021. ISBN 0801861489 (alk. paper) 0801861497 (pbk. : alk. paper)See Book Reviews Page for review of earlier edition.

Markin, R.F. The Alzheimer's Cope Book: the complete care manual for patients and their families. Seacus, NJ: Carol Pub. Group, 1992. ISBN: 0806513705

Markin, R.F. Coping with Alzheimer's: The Complete Care Manual for Patients and Their Families. Seacus, NJ: Carol Pub. Group,1998. ISBN 0806519622

Marley, Marie. and Daniel C. Potts. Finding joy in Alzheimer's: new hope for caregivers. Kansas City: Joseph Peterson Books, 2015. ISBN: 9781512321975

McKim, Donald K. God Never Forgets: Faith, Hope, and Alzheimer's Disease. Westminister/John Knox, 1997.

McLeod, Beth Witrogen. Caregiving: The Spiritual Journey of Love, Loss, and Renewal. New York: John Wiley & Sons, 1999. ISBN 0471254088 (Published April 1999. John Wiley & Sons, 605 Third Ave. New York, NY 10158 1-800-225-5945 $22.95, 256 p.)

Molloy, William and Paul Caldwell. Alzheimer's disease. Buffalo, N.Y. : Firefly Books, 1998. ISBN: 1552092410

Naughtin, Gerry and Terry Laidler. When I Grow Too Old to Dream: coping with Alzheimer's Disease. North Blackburn, Australia: Collins Dove, 1991. ISBN: 1863710752

Nelson, James Lindermann & Hilde Lindermann Nelson. Alzheimers: hard questions for families: a guide through the moral morass of caring for a loved one with Alzheimer's disease. New York: Doubleday, 1996. ISBN: 0385485344

Nissenboim, Sylvis, and Christine Vroman. The Positive Interactions Program of Activities for People with Alzheimer's Disease, 1998. Oliver, Rose and Frances A. Bock. Coping with Alzheimer's: a Caregiver's Emotional Survival Guide New York: Dodd, Mead & Co., 1987. ISBN: 039608933X

Olsen, Ricahrd, Ezra Ehrenkrantz, and Barbara Hutching. Homes That Help: Advice from Caregivers for Creating a Supportive Home Environment, 1993.

Olshevski, Jodi L. Stress Reduction for Caregivers. Philadelphia, PA: Brunner/Mazel, 1999. ISBN: 0876309406

Ostuni, Elizabeth. Getting Through: communicating when someone you care for has Alzheimer's Disease. Vero Beach, FL: Speech Bin, 1991. ISBN: 0937857017

Parrent, Joanne. Courage to Care: A Caregiver's Guide through Each Stage of Alzheimer's. Alpha Books; ISBN: 0028642023

Peyre-Ferry, Marcella. Getting past the guilt: when a loved one has Alzheimer's dementia. 2014. ISBN: 9781499718867

Pfeiffer, Eric. Caregiving in Alzheimer's and other dementias. New Haven: Yale University Press, 2015. ISBN: 9780300207989

Pollen, Daniel A. Hannah's Heirs: The Quest for the Genetic Originas of Alzheimer's Disease. Oxford Univ. Press, 1996. Post, Stephen G. The Moral Challenge of Alzheimer's Disease, 1997.

Powell, Lenora S. and Katie Courtice. Alzheimer's Disease: a Guide for Families. Reading, Mass.: Addison-Wesley, 1990. ISBN: 0201060981 (hbk.); 020106099X (pbk.)

Rader, Joanne. Individualized Dementia Care: Creative, Compassionate Approaches, 1995.

Rau, Marie T. Coping with Communicaton Challenges in Alzheimer's Disease. San Diego, CA : SingularPub. Group, 1993.

Raymond, Florian. Surviving Alzheimer's: A Guide for Families. Forest Knolls, CA: Elder Books. ISBN: 0943873002

Reisberg, Barry. A Guide to Alzheimer's Disease New York: Free Press, 1983. ISBN: 0029263700

Residental Care: A Guide for Choosing a New Home. Chicago: Alzheimer's Association, 1998.

Roberts, D. Jeanne. Taking Care of Caregivers: for Families and Others Who Care for People with Alzheimer's Disease and Other Forms of Dementia New York: Continuum, 1989.

Roche, Lyn. Coping with Caring: Daily Reflections for Alzheimer's Caregivers. Elder Books, 1996.

Roberts, Joan D. Caring for Those with Alzheimer's: A Pastoral Approach. Alba House, 1991.

Rogers, Joseph. Candle and Darkness: Current Research in Alzheimer's Disease. Bonus Books, 1998.

Ronch, Judah L. Alzheimer's Disease: a practical guide for those who help others. New York: Continum, 1989. ISBN: 0826405002

The Rush Manual for Caregivers. Chicago: Rush Alzheimer's Disease Center, 1994.

San Pietro, Mary Jo and Elizabeth Ostuni. Successful Communication with Alzheimer's Disease Patients, 1997.

Schiff, Myra and Lori Kociol. Alzheimer: a Canadian Family Resource Guide.Toronto: McGraw-Hill Ryerson, 1989. ISBN: 0075497743

Selby, Lynne. Flowers for Mother: an A-Z guide for caregivers coping with Alzheimer's disease. Santa Barbara: Capra Press, 1991.

Scott, Paula Spencer. Surviving Alzheimer's: practical tips and soul-saving wisdom for caregivers. San Francisco: Eva-Birch Media, 2014. ISBN: 9780615936413

Sheridan, Carmel.Failure-Free Activities for the Alzheimer's Patient. Forest Knolls, CA: Elder Books. See Book Reviews Page.

Sheridan, Carmel. Reminiscence: Uncovering a Lifetime of Memories Forest Knolls, CA: Elder Books

Safford, Florence. Caring for the Mentally Impaired Elderly: a family guide. New York: Henry Holt, 1987. ISBN: 0805000801

Strecker, Tereas R. Alzheimer's: Making Sense of Suffering. Huntington House, 1997.

Siciliano, Paula. Caring for the Person With Alzheimer's or Other Dementias. Rev. ed. Hartman Publishing, 1999 ISBN: 1888343346

Silverstein, Nina M. Dementia and wandering behavior: concern for the lost elder. New York: Springer Pub. Co., 2002. ISBN: 0826142621

Steps for Caregivers: Caring for Persons with Alzheimer's Disease. Chicago: Alzheimer's Association, 1999.

Strauss, Claudia J. Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member or Friend. New Harbinger, 2002. ISBN: 1572242701

Strom, Kay Marshall. A Caregiver's Survival Guide: How to Stay Healthy When Your Loved One Is Sick. Downers Grove, IL: InterVarsity Press, 2000. ISBN: 0830822305

Tame, Amiria Choukair. Healing the Wounds of Alzheimer's Disease. DocuMall, 1999.

Teitel, Rosette. The Handholder's Handbook: a Guide to Caregivers of People with Alzheimer's or other Dementias. New Brunswick, NJ: Rutgers University Press, 2001. ISBN: 0813529395

Warner, Mark. The Complete Guide to Alzheimer's-Proofing Your Home West Lafayette, IN: Purdue University Press, 1998, ISBN: 1557531277 (Phone: (800) 933-9637)

Wenrick, Neta. So Much More Than a Sing-A-Long (Music Therapy activities for older adults) Forest Hills, CA: Elder Books.

Wexler, Nancy. Mama Can't Remember Anymore: Care Management of Aging Parents and Loved Ones Tarzana, CA: Wein & Wein, 1996. ISBN: 0962935808

Wolf-Klein, Gisèle P., and Arnold P. Levy. Keys to Understanding Alzheimer's Disease. Hauppauge, N.Y.: Barron's Educational Series, 1992. ISBN: 0812047583

Worship Services for People with Alzheimer's Disease and Their Families: A Handbook. Troy, NY: Eddy Alzheimer's Services; Albany, New York: Northeastern New York Chapter of the Alzheimer's Association (85 Watervliet Avenue, Albany, NY 12206).

Yale, Robyn. A guide to facilitating support groups for newly diagnosed alzheimer patients Forest Knolls, CA: Elder Books, 1994.

Zarit, Steven H. The Hidden Victims of Alzheimer's Disease: Families under Stress. New York: New York University Press, 1985. ISBN: 0814796621 (alk. paper); 081479663X (pbk.)

Zgola, Jitka M. Care that works: a relationship approach to persons with dementia. Baltimore: Johns Hopkins University Press, 1999. ISBN: 0801860253 (alk. paper) 0801860261 (pbk. : alk. paper)

Zgola, Jitka M. Doing Things: a guide to programing activities for persons with Alzheimer's disease and related disorders Baltimore: Johns Hopkins University Press, 1987. 080183466X (alk. paper); 0801834678 (pbk.)

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